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talks with Dr Weight and tips that work for us

Dr. Weight called. The doctor’s who’s job it was to discuss any long-term body issues like bone density, growth or WEIGHT. We talked long and hard about what Peyton took from that conversation. We discussed how hard it is to make sure survivors are getting the care and SURVEILLANCE they need. We went over how [...]

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…and then i ripped off her arm and beat her to death with it.

Not really. But I thought about it. Really hard. Yesterday, Peyton had her first appointment at the SURVIVORSHIP CLINIC. Oncology, Endocrinology, Psychology, Neurology, Research, and simple lab work. Peyton’s doing great, she’s wonderfully healthy and we talked about a few issues that I knew were over her head. Then one doctor got on a subject [...]

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words can be a great thing

Dear Parents of Peyton Mayhew… I can’t tell you how many letters over the years have been news we didn’t want. But this was good. So good. Great. FABULOUS. Now this this only three years out of five until we can use the “cured” with confidence. And nothing is ever guaranteed. But these words made [...]

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penny for penny…unless you don’t do math and then you’re screwed

I spent a lot of time waiting on doctors today. Something I’m pretty used to doing. Before I was the “coma mom” or the “wheelchair mom”,  I was always the “cancer mom”. I had two healthy legs and two healthy arms and if THIS is the price I pay for my daughter’s healthy body, I’ll [...]

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There’s not enough candy in the world for this much crazy

Peyton had an oncology checkup on Tuesday. I had the pukes. They rescheduled it for Wednesday. I still didn’t feel like I was safe to be around the immune-compromised kids, so I canceled that one too. Now, we wait until next week to see her doctor and get her bloodwork. And I’m sort of relieved. [...]

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Only The Best…Nothing Else Will Do

In the days before Peter took the job that brought us to Georgia, we drove north to check out the hospital. We couldn’t even consider moving until we felt safe in our choice that SHOULD we need a hospital for treatment again, Peyton would have the best options available. We got a grand tour of [...]

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