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falling up

Today I laid on the floor.  On purpose. With a goal. One of my biggest fears is falling. From beds.  Chairs.  Tranfers. That old joke is true.  It’s not the fall, it’s the landing. So today at physical therapy I told them to teach me how to get up. Not that I fall a lot. [...]

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legends of the fall, the not-brad version

I fell down again. This time I fell because of carelessness. For most people it can mean stubbing your toe.  Maybe you drop a bowl of cereal.  Perhaps you drop a stack of paper. For people like me, we can’t afford to be careless. Every time we move from bed to chair.  Every time we [...]

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the difference in shopping experience

People think it’s so cool when you get stuff for free.  They forget everything comes with a price of it’s own for me. I remember back when things were easy. When they were simple. When I took them for them for granted. Then I got the offer to be a part of the GAP’s #GapMagic [...]

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have you realized how long i’ve been home? i didn’t, heh

It has been a little over four months since I came home from the hospital.  Sometimes it feels like I’ve made such great progress in those months, and sometime I wonder why I’m not farther towards the end goal than I am. I mean, when I left the hospital I was freaked out by the [...]

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some places are full of sparkles and unicorns…this is full of sweat and tears

Today I entered a place of work. It’s one of those places most will be lucky to never see.  In fact, you may pass a place like it every day and you don’t even know it.  Because it can be quiet and unexpected, most people would never guess that its the kind of place where [...]

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naked hopping, not as exciting as it sounds

I haven’t been inside my shower since November 2009.  Today I sat outside the door and looked in. Shampoo was still in the same place.  So was the razor for shaving your chin (or legs, depending who you are).  Ready for use was the bath soap, the adult kind, not the kid’s. No one would [...]

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when i daydream i have two good arms, but for different reasons than you think

Opportunities come that I can go out with member of my therapy team.  These chances can sometimes really teach me something important. Like the last time I went I realized something profound…I was the only one there that LOOKED handicapped.  They were all walking while I was in a wheelchair, their arms and legs worked [...]

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the summer of hope. and boobs. which is hope for some. especially if you’re thirteen.

We watch while there are changes here and there. An arm movement here….a leg moving there…a boob can be be grabbed all the time, apparently. But it can be hard for me to always see the differences. I see my face and body everyday. So when a friend comes that has been here every few [...]

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sometimes there can be something that is something that something does something about….sometimes

Every now and then I can find inspiration from my own body.  It can do something that I truly wasn’t expecting. My limbs can be my greatest source of frustration.  I want to see progress where there can be little sometimes.  I have to be satisfied with little. Just for the record, “little” sometimes sucks. [...]

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when i am superman i can fly. and bake. and knit.

I’ve been reading what others wrote about me. People wrote some really nice stuff. They thought I was incredibly nice and inspiring.  They thought I was full of hopeful dreams and bright beliefs.  They thought I was sweet and loving. They were wrong. I rub body parts and demand nudity.  I believe there is no [...]

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let’s talk about math, baby. and if you just sang along, we’ll know about it.

Sometimes I will feel something inside that cries. It wants for things to work better.  Harder.  Right. But I always pushed for more. I thought that I could be better.  And harder.  And right. And that was before the strokes. Back when the world was simple. So now the body doesn’t work quite right. My [...]

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sometimes i have dreams. but i’m not martin luther king, jr. not THOSE kinds of dreams.

I talked dreams with my husband last night.  The confusing and nonsensical dreams that filled my sleeping coma days. i remember them. Dreams of theater that can’t finish, of westerns that don’t die,  there are big glass rooms with music that never finish, and there was someone who was done and getting ready to leave [...]

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