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“retarded” is never the right word

I had to have one of the toughest conservations a parent has to have with a child. Not THAT conversation. We had that conversation a long time ago. It involved graphs and diagrams and cookies. My 14yo son wanted to tell me about the funny thing his school buddies did. The story began with, ” [...]

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my mother’s gift

I was too young to fully grasp my loss when I left that hospital alone. I was a beaming 23 when I brought home my first baby. A little older when my first daughter took her wobbly steps. I felt ancient at my youngest’s cancer bedside. Next year I am the mom of a high [...]

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making Mother’s Day a little more

I’ve known a lot of mothers. I’ve been a mother for 14 years. I’ve known mothers who fought a daily battle with emotional, mental or physical disease in their own bodies. I’ve knows mothers who would have gladly fought those battles for their child if they could. I’ve known single mothers who have struggled to [...]

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the dance of sacrifice

When two parents are separating it’s easy to let anger and hurt take priority over the children you share. Normal people, those unhindered by handicaps, have the luxury of furious departures. Something the wheelchair, and the limitations that go with it, have forced upon us is greater compromise. The reasons that we can no longer [...]

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inspire someone

When Peyton was diagnosed with cancer the doctor gave a very important bit of advice. It wasn’t about her diet or meds, it wasn’t what we could do to make chemotherapy go smoother for a child. It was that when the treatment was all complete and we moved on with life – and to have [...]

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to be myself

I’ve shared tips and told you how *I* do thing. I told how we managed to save money by getting two gallons of milk out of one gallon. I showed you how *I* learned to take off lids with one hand. I’ve shown you tools that have helped me along the way, ways I’ve learned [...]

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every challenge is worth it

When you have a handicap life can be difficult. When you are making choices to change the lives of, not only you and your spouse, but the most important people to ever take breath life can be brutal. In one situation the cause is out of your control. All you can hope to do is [...]

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they grow so fast

  How did this happen? They were just babies. I have the proof. They are going to be amazing adults if the outstanding kids they have become is any sign of things to come. Every day I get to spend with them is more precious than the last. *OOOF* my heart

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the sounds of silence

The shades block the sun from bringing me into full consciousness. I can hear breaths that tell me the day’s insanity hasn’t yet started. I snuggle deeper into the arms of drowsy peace. There are dreams that taunt from the edges of reality. Don’t wake up. Don’t do it. “Mommy? You awake?” DAMN.

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i’m getting a tattoo

On the trip I’m planning to Tampa I’ve made time for certain things. The kids have busy schedules to see friends. I’ve got plans to shore up my hug supply. Friday, April 6, 2012 at 7:00 PM at The Rack There are places we can’t wait to go. Things we’re looking forward to doing. People [...]

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Invisalign Teen Celebrities: then my daughter’s head exploded in a shower of glitter

Trying out Invisalign aligners as the mom of a teen wearer has been a different challenge from having them as an adult. As if you need reason besides the nearly invisible appearance and the ability to remove them WHENEVER, Invisalign now has a group of Teen Celebs that are singing their praises. Or I guess texting their praises. [...]

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the dog’s obsession

We got a puppy when Buffet had to be put down. Our family has been going through enough changes and rough patches that Peter and I wanted to make this pet transition as easy as possible. This is Dug. Dug is half lag, half sharp-pei. He’s ALL puppy. He goes and plays and runs and [...]

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being enough parent for my kids

We’ve raised monsters. Amazing, incredible monsters. It’s such a weird line I walk between being as firm as they need and as lenient as they deserve. These kids have been through thing that would break most adults. Cancer. A come. Strokes. A life transformed to deal with a handicap. Now they have parents going through [...]

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