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today’s inspiring lesson

Sometimes when you’re in a wheelchair and handicapped and medically complicated it can start to feel like that is ALL your life is about. I write about my conditions, but I hope you don’t think they DEFINE me. I have to remind myself that just because I’m thankful with life in general that it doesn’t [...]

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words trapped inside

We sat together and made a list. I told her what to write “What IS Great About Being In The Hospital“. I don’t remember the whole thing, but I do remember that one of the things on my list was “gravy”. Bless their hearts. There was gravy on everything. That was the first thing thing [...]

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trying to get my eyes fixed

I went to the ophthalmologist’s office expecting to get Botex injections around my eye to combat muscle spasms. That’s not so much what happened. Instead of a quick stab with a needle I got a full eye exam with a bunch of words I didn’t understand. After all the testing and checking and making of [...]

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you can’t do that

There is a certain “you can’t do that” to my life. It’s been said in the past. Some people believed I could only fail. I’d like to say that I knew right away they were wrong. I could face every challenge. I was positive there was nothing but good times ahead. I’d like to say [...]

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first we have naps and then juice and cookies

It isn’t just that my body isn’t what it used to be in terms of size of my thighs, the color of my roots or the direction of my nipples, I am frustrated with what feels like weakness in my basic stamina. It gets on my nerves that I have to sleep every day. I [...]

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i’m not smarter than a 5th grader and my handwriting isn’t better than a 2nd grader

As I signed Peyton’s agenda, she said, “There’s a boy in my class who thinks your writing is messy.” OOOOF. He’s right. To a 7yo who’s told to work on neatness and staying in the lines it IS messy This little boy wouldn’t understand what an achievement it is to sign that agenda at all. [...]

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so much for concerts

A few days ago one of the kids screamed in laughter RIGHT IN MY EAR. There was no thought about it. Not from them. Not from me. But right after I could tell the hearing my good ear had changed. Back story: I have partial deafness in my right ear from the stroke. I’m left [...]

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what we can do together

In the past I’ve had the chance to help families as a blogger and get involved with efforts to benefit pediatric cancer families. Then a moment comes along that both meet in one and I KNOW these sites aren’t just proof of narcissism gone wild! Are you familiar with Love Drop? Love Drop is a [...]

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join us for 1

Back in the day, when Peyton was sick, we did part of our treatment at All Children’s Hospital in St. Petersburg, FL. From our house to the hospital it was over an hour and a half drive. Totally worth it, when it’s your child. Part of Peyton’s “roadmap” called for her to undergo cranial radiation. [...]

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getting bad treatment from @TMobile

I have AT&T cell phone service. When I moved to GA the summer of 2009, I had Tmobile and was very happy. Unfortunately, our house was built REALLY close to cell phone tower, so the signal literally goes OVER my house. LIKE THIS When we moved into this house over two years ago we ran [...]

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if i seem a little cranky, you’ll know why

Diet. A four-letter word for reason. But I’m going on one. Why? You can only be so vain when you’ve had a stroke. I’ve had two schools of thought on this. I could have more strokes.  My body could just decide to give up and poop out. Do I really want my LAST MEAL to [...]

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i could have had a v-8, but i wrote instead

So I started writing THE BOOK. The one that I’ve hedged about writing. It’s doing what I was afraid it would it would do. It made me remember things I didn’t want to remember. I had feelings I pushed away. A person I’m ashamed to have to have been. But I had to be HER [...]

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own your nap

“You need to own your naps again.” Pete said this other day when we were talking about a lot of things that needed SOMETHING. I have this site and Aiming Low that I’m building up. 25 writers I love talking to each day. We’re organizing events at BlogHer and TypeAParent. The freelance thing I do. [...]

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