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vacation without daddy

Im in Florida. On vacation. I’m not having any deeper thoughts than I absolurely HAVE to. I have one that is enjoying the pool and water. I have one enjoying a social calendar. I have one who hit some puberty warp speed at the state line that made hirm suddeny taller and gave him a [...]

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join us for 1

Back in the day, when Peyton was sick, we did part of our treatment at All Children’s Hospital in St. Petersburg, FL. From our house to the hospital it was over an hour and a half drive. Totally worth it, when it’s your child. Part of Peyton’s “roadmap” called for her to undergo cranial radiation. [...]

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talks with Dr Weight and tips that work for us

Dr. Weight called. The doctor’s who’s job it was to discuss any long-term body issues like bone density, growth or WEIGHT. We talked long and hard about what Peyton took from that conversation. We discussed how hard it is to make sure survivors are getting the care and SURVEILLANCE they need. We went over how [...]

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…and then i ripped off her arm and beat her to death with it.

Not really. But I thought about it. Really hard. Yesterday, Peyton had her first appointment at the SURVIVORSHIP CLINIC. Oncology, Endocrinology, Psychology, Neurology, Research, and simple lab work. Peyton’s doing great, she’s wonderfully healthy and we talked about a few issues that I knew were over her head. Then one doctor got on a subject [...]

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why pretty is like pez (and @Chookooloonks)

Strokes aren’t pretty. They aren’t. I’m not. Now, I can hear you sputtering about how I should find mysel beautiful, and I do. I’m just not PRETTY. Pretty can fade with time. Pretty is swallowed by ugliness in your soul Pretty is like candy.  It’s good, it’s fun, you want some, but it won’t FEED [...]

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a space of theirs

Writing has been an outlet for me. A way to get my feelings on paper. Get them out of me so I can go on day to day. I don’t know why I didn’t think of that for my kids. Why wouldn’t they need a way to express what is going on in their busy [...]

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my gal friday

I have searched for ways of making my kids FEEL more together. Part was being able to get someone who could drive and do it when we needed it most. The cost more than our family cutting a few corners. I guess there are those that would judge me for getting what basically comes down [...]

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nobody puts my kids in a corner

Yesterday Peter and I met with a pediatrician who told us that our kids seemed to have a lot of pent up emotions. I’m going to let that one simmer for a second. The kids who have dealt with their mom having a stroke. Then their baby sister going through cancer treatment. After which, mom [...]

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what matters

I’ve been off my normal schedule this week. I went to a celebration of women in social media. I had injections of Phenol in my leg. I had an unusual amount of work to complete. I did more than my average amount of exercise. I bent over backwards to hear my kids laugh.  “Driving them [...]

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getting the smiles

Some days I get to take pictures like I did back in the old days. I get to capture the smiles on my kids’ face. Thank you, Susan.  That’s all I can even say.

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Learning how to use the old toys…with lots of buttons, which are GREAT for one-armed people

The softest smile you can find. A bowl-full of craziness! Ummm…….no flash photography please. My camera. Learning something that I used to love….somehow I will be able to love it again.

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kids are my reason for working harder, they are also the reason i had to go to AA

People will ask what my motivation was for getting better. I wanted to get out of the hospital for sure. Walking again has always been something I tried to do. But mostly, the number one thing has always been my kids. The kids that make me laugh. The kids that make me try one more [...]

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I could have been napping

So, I wrote this whole post about the horrors Peter put me through this weekend. Seriously.  Home Depot…rakes…sweat…it was like the trifecta of hell. But, some great things came out of it. And by “great things”, I mean other than the spectacular AWESOME that is an arm cramp.  Cause, if you haven’t had one? Try [...]

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