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the dance of sacrifice

When two parents are separating it’s easy to let anger and hurt take priority over the children you share. Normal people, those unhindered by handicaps, have the luxury of furious departures. Something the wheelchair, and the limitations that go with it, have forced upon us is greater compromise. The reasons that we can no longer [...]

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every challenge is worth it

When you have a handicap life can be difficult. When you are making choices to change the lives of, not only you and your spouse, but the most important people to ever take breath life can be brutal. In one situation the cause is out of your control. All you can hope to do is [...]

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the words i have

There are certain things I had to learn to do to keep writing. I’ve never been one to be great with imagery. My words were plain and simple. My style is almost stark now. I have to keep the look very minimalistic because my vision can’t handle too much action. Instead of telling you how [...]

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i have to tell my truth

Deciding you want to split up a marriage is never a cut and dried thing. Rarely, walked away from with both sides feeling chipper. Even with the most adult, civil, for-all-the-right-reasons break the hurt is massive. Never just one-sided. No one walks down that aisle, puts their hands in anther’s and think, “This will do [...]

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the rubix cube of separation

The choice to not be married came with the decision to be alone. For a lot of people that thought is scary and daunting bur it comes with an extra layer of difficulty for me. Now, don’t mistake me. I’m not thinking about dating anyone. I could care less about some faceless guy. But being [...]

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hotter than you thought i was

I can’t regulate the temperature on half my body. On my stroke-effected side I don’t have the ability to cool off, so I’ll bust out in a sweat for no reason. On one side. For no reason. When the other side is actually cold. How screwed up is THAT? So yes, I will sweat for [...]

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team parents

The fog is lifting. It isn’t gone. It mat never leave. It PROBABLY won’t ever leave. But the fog IS lifting. The lifting of the fog comes with working together for a common goal. it would have been a thousand time easier to have won each battle and just had my way. It would have [...]

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words trapped inside

We sat together and made a list. I told her what to write “What IS Great About Being In The Hospital“. I don’t remember the whole thing, but I do remember that one of the things on my list was “gravy”. Bless their hearts. There was gravy on everything. That was the first thing thing [...]

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when you have jerky, hairy balls

I have gotten several emails about the eye surgeries I have coming up in Feb. They’re hard to explain, so I thought maybe these pics would help. 1. I’m having surgery to fix the lazy eye. 2. I’m having surgery to remove hairs that lay on my eyeball. 3. I’m having surgery to fix an [...]

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i like pretty pictures

Before I had the strokes I loved to take pictures. I saw THINGS with the  eye of what it would look like in a frame. But at my core, I loved to shoot pictures of people. I would follow people, catch the not-typical photo and capture this GLIMPSE into their soul. I loved pictures. I [...]

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like my first time getting my Bliss on #Blissdom

It isn’t the first time I’ve traveled since my strokes. It isn’t my first conference since my wheelchair. It isn’t the first time I’ve gotten up in front of a group of people and let them see my disabilities. It won’t even be my first time at Blissdom. (It WAS my first conference in 2008 [...]

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the hills are alive…

I’m getting one of these: Yes. I’m getting a bionic implant that will teach me how to use my “inside voice”. Ok. What part didn’t you believe? I’m getting a bionic implant OR I have an “inside voice? Don’t answer that. But I am getting that. THAT is Oticon Intiga is the new super tiny, [...]

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being at @CallawayGardens was a GOOD eye-opening experience

Pete and I went to Callaway Gardens for the Harvest Moon Festival.  I expected to enjoy things they had set up and it’s a gorgeous time of year to be outside in Georgia. It was pretty. We got to see the B-52′s! We ate a brownie. With carrots. and spinach. and orange juice. and flaxseed. [...]

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