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lesson 1: how to laugh

People have asked, “How can you still laugh?” To be honest, I understand the question very well. It would be just too easy to let it all take over.  To give in.  Give up. It is a slow, baby-stepping, small-improvement, thankful-for-every-tiny-thing kind of thing. And I laugh. Maybe some don’t, but I have to. I [...]

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another slice of the past you have to give up

It’s hard when I’m watching my friends make plans and I know I can’t go.  Not because of cost or convenience (although those are always issues) but because of what I can and can’t do. I worry about about being the party pooper.  Being the one to one to ruin plans.  Or to bring worry [...]

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did i really just write a whole post about facebook?

There are a bunch of posts begging to be written. The ones about our panel, our time in  NYC, what it was like with the chicks I adore most. Aiming Low chicks, if you were confused. But today I had to do something that took a pretty big step. And it seems kind of stupid. [...]

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every day is a fresh start, sort of like a summer’s eve

In my first days home from the hospital I had to get used to being in this space. It was a much different time in my life. I had to learn to feel safe again. I had to learn that there was a place I could stage my battle with my body.  I had to [...]

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when the right reasons are selfish

There has been a weird sense of what the normal world would call popularity. And I really don’t get it. Something happened when I was in the hospital.  When people thought I might die, they really chose to do the absolute best and most they could for my family. Food.  Support. Understanding. Toys. Comfort.  Distractions. [...]

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when you know you suck but you can’t really help it

It’s hard when you’re offered something you’d like to take advantage of, but you have to figure out the right way to tell them that you’re in a wheelchair.  Do you tell them casually, pretend that everyone knows, and it’s no big thing. Or do you say it sort of pointedly so there is no [...]

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i let my husband electrocute me, THAT’S love, darn it

Electrolysis.  Water Therapy.  Acupuncture. Deep Tissue Massage. Healing Stones. Braces. Exercises. We’ve tried it all, plus some, or have plans to try it soon. I am willing to try and work so hard.  I want it and I wonder where I’ll draw the line. There IS a line. There’s a point of no return, where [...]

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i have a place again, one all my own, MINE!!

Where do you spend your time? If you’re like me, you’re used to having most of your time spent in front of a desk. Granted, a lot of the time is computer-bound, but I was used to all the other time spent with paperwork and other work. In recent days we’ve moved our girls’ upstairs [...]

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looking at old pictures of myself reminds me that i need my roots done

It’s hard to look at old pictures of myself.  It feels like a world away. It can feel like a different person. That woman didn’t have to wonder about whether her smile looks ok. She had both legs working beautifully.  Having two hands on the camera was a thoughtless reality, not a goal. I look [...]

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have you realized how long i’ve been home? i didn’t, heh

It has been a little over four months since I came home from the hospital.  Sometimes it feels like I’ve made such great progress in those months, and sometime I wonder why I’m not farther towards the end goal than I am. I mean, when I left the hospital I was freaked out by the [...]

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i got a new talent and it doesn’t involve cherry stems and knots

I was surprised when my whiny (YES, WHINY) post encouraged non-commenters to comment.  I don’t even know how to tell you that I wasn’t expecting people to actually come out of the woodwork to be REALLY kind and say lovely, squishy things that kept me going on a day when I just wanted to roll [...]

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some places are full of sparkles and unicorns…this is full of sweat and tears

Today I entered a place of work. It’s one of those places most will be lucky to never see.  In fact, you may pass a place like it every day and you don’t even know it.  Because it can be quiet and unexpected, most people would never guess that its the kind of place where [...]

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i used to wish my husband was an Elvis impersonator, now i wish he drove a bus (although, sometimes i still wish for the impersonator)

Days go by. I don’t leave the house like I should. I’m hiding inside my walls. I force myself to go out.  I’m always thankful for it.  In fact, I feel better and I get more accomplished and I want to DO more.  More than I have the last few days. When all I want [...]

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